Brain Tumor Links

We will be glad to include links to additional brain tumor organizations. Please e-mail us at Webmaster@sbtf.org with your information.

Southeastern Brain Tumor Foundation
P.O. Box 422471
Atlanta, Georgia 30342
404-843-3700
www.sbtf.org
sbtfatlanta@aol.com

Acoustic Neuroma Association
600 Peachtree Pkwy, Suite 108
Cumming, GA 30041-6899
Phone: (770) 205-8211
Fax: (770) 205-0239 
http://anausa.org 
ANAusa@aol.com

American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
800-886-2282
www.abta.org
info@abta.org

Brain Tumor Action Network
38940 1st Avenue
Zephyrhills, FL 33542
813-748-4560
www.btan.org

Brain Tumor Foundation for Children
6065 Roswell Rd., NE
Suite 505
Atlanta, GA 30328
404-252-4107
http://braintumorkids.org

Brain Tumor Resource and Information Network (B.R.A.I.N.)
PO Box 4316
Glen Allen, VA 23058-4316 
804-749-3649 or 800-900-6195 (code 48)
http://www.brainsite.org

Brain Tumor Society
124 Watertown Street Suite 3H
Watertown MA 02472-2500
800-770-TBTS (8287)
www.tbts.org
info@tbts.org

Charles Warren Brain Tumor Awareness Foundation
P.O Box 298
Douglasville, Ga. 30133
770-942-0639
http://www.charleswarrenfoundation.org
awareness@charleswarrenfoundation.org

Children's Brain Tumor Foundation
274 Madison Avenue, Suite 1301
New York, NY 10016
212-448-9494
Fax: 212-448-1022
Toll-free Patient Support Line: 866-228-HOPE
info@cbtf.org
http://www.cbtf.org

The International Brain Tumour Alliance
PO Box 244, Tadworth, Surrey KT20 5WQ
United Kingdom
http://www.theibta.org
chair@theibta.org or kathy@theibta.org

National Brain Tumor Foundation
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Patient Line: 1-800-934-CURE
Business Line: 415-834-9970
Fax: 415-834-9980
www.braintumor.org
nbtf@braintumor.org

North American Brain Tumor Coalition
www.nabraintumor.org
info@nabraintumor.org

One More Day for Angels
770-597-6747
www.onemoredayforangels.com 
sdb118@bellsouth.net

The Brain Tumor Center at Duke
Duke Comprehensive Cancer Center
Durham, NC
www.cancer.duke.edu/btc

Emory Brain Tumor Program
Winship Cancer Institute
Emory University
Atlanta, GA
http://www.neurosurgery.emory.edu/BTP/index.htm

The Musella Foundation for Brain Tumor Research and Information
1100 Peninsula Blvd.
Hewlett, NY 11557
515-295-4740
www.virtualtrials.com
musella@virtualtrials.com

The Johns Hopkins Brain Tumor Radiosurgery Site
Offers the Meningioma Mailing List
Department of Neurosurgery
The Johns Hopkins Hospital
600 North Wolfe Street
Baltimore, MD 21287-8811
410-614-2886
Fax:  410-614-2982 or 410-614-7011
www.med.jhu.edu/radiosurgery

The University of Texas, MD Anderson Cancer Center, Familial
Brain Tumor Registry
Department of Epidemiology - Box 189
515 Holcombe Blvd.
Houston, Texas 77030-4095
Contact Mary Wright, R.N. to register or request information.
Phone:  713-745-4113 or 800-248-4856
Fax:  713-792-8261
www.epigenetic.org/~cspencer/brain.html
mawright@mdanderson.org

MedulloBlastoma PNET Online Support Group
This is an online support group set up for survivors, parents, professionals, and anyone who is interested in medullo blastoma or pnet brain tumors.  
To subscribe, write to Medulloblastoma-subscribe@onelist.com

Cranium Crusaders--a forum created by Meningioma Mommas
for anyone interested in brain tumor advocacy
Register at http://www.meningiomamommas.org/board/

CancerQuest
Emory University
Winship Cancer Institute
1365B Clifton Road NE
Suite B4100
Atlanta, GA 30322
This is a website that provides easy-to-understand answers to difficult questions about the biology of cancer -- including brain tumor.
www.CancerQuest.org
cancerquest@emory.edu

Epilepsy Foundation - Idaho
Seizure Recognition and First Aid
http://www.epilepsyidaho.org/seizure.htm

CaringBridge - a 501(c)(3) non-profit web service.
Provides free personalized websites that support and connect loved ones during critical illness, treatment, and recovery.
http://caringbridge.org/

Following are links for the Social Security Disability issue which may be applicable to persons diagnosed with brain tumor:
Disability Home Page:
http://www.socialsecurity.gov/disability/index.htm
“Blue Book” detailing adult listings for disability. Chapters 11 and 13 contain pertinent sections under neurological and neoplastic respectively:
http://www.socialsecurity.gov/disability/professionals/bluebook/adultlistings.pdf(PDF file - see icon below to download Adobe Reader for viewing PDF files.)
There is an online application form but if the diagnosis is expected to end in death, a phone call must be made to set up an office or phone interview.
Most brain tumor centers will have have social workers who are able to pull together the pertinent information needed for the interview and/or application.
(Note that once someone receives Social Security Disability benefits, he/she may be eligible to apply for a disability exemption on their property taxes. Check with your county tax office.)

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Note: The inclusion herein of a link to another site does not imply endorsement of an organization by the Southeastern Brain Tumor Foundation.

The purpose of this site is educational and informational. Patients and caregivers should consult their health care professionals for medical guidance.